Hyperacusis

by Candy
(Los Angeles, CA, USA)

I suffer hyperacusis. My ears are hypersensitive to certain noises. Certain noises make my ears HURT! Excruciating TORTURE! People popping, clicking & smacking their gum, sucking hard & smacking on their food & candy & sucking their teeth hard for 20 minutes continuously after eating. Loud vehicles. People typing. I also get distracted very easily. I have to listen to white/pink/brown noise or ocean waves 24/7. I'm a prisoner of this disorder. It has ruined my life & social relationships. My family & everyone else HATE me because of this. They think I'm just CRAZY! & my family smack in my ear ON PURPOSE, & random people pop, click & smack their gum ON PURPOSE just to get me riled up & then laugh. It's torture! No psych medication in the world is going to help. They haven't helped before. They're not going to help now. Hearing trigger noises make my Tourette's go out of whack.

My own family don't even care about me, & they wish me dead, & they spread lies & hate about me. I had to move across the country to get away from them & cut off total contact with them to prevent from further abuse.

I'm 29 & have been suffering it since I was 16. Almost 17. I suffer OCD, anxiety, Tourette's & depression, & have been on an array of psych meds all my life. I had 2 strokes when I was 5, & I have TMJ. I had nose surgery twice & eye surgery once, all as a child. I'm easily prone to ear infections. I also suffer vertigo. The vertigo can last for like 3 weeks.

33 decibel ear plugs don't even help. I can still hear outside sounds with so-called noise-cancelling earbuds/headphones, while playing the ocean sounds. Sometimes, I rather be dead or @ least deaf, to not have to suffer with this. I have even attempted suicide because of this condition.

When I ask people politely to stop with their gum, they say, "You crazy b****, go take your medicine!" & then, everyone on the bus/train laugh @ me. I've even been chased home several times with people threatening to hurt me because of this. I've unintentionally developed many enemies because of this. No one cares about my daily suffering. & everywhere I go, it's the gum-clicking. Like it's a fashionable trend! I stay home & hardly leave the house because of this people clclicking their gum like uncivilized cows! It's just as unescapable as the All-Seeing Eye of Lucifer! Everywhere I go, EVERYONE has the gum ignorance!

I'm disabled & on a fixed income, & I can't afford any more than $30 of noise cancelling HEADPHONES. Maxell doesn't work. Phillips used to have some for $25 from Walmart that worked very well. They don't make them anymore.

I JUST got referred to an ENT. I've been asking for YEARS about what could be wrong, & no doctor in the world could tell me. My current PCP just recently referred me a couple of months ago to an ENT. My condition is disabling & crippling. I don't want psych meds, ear implants or surgery as a "cure" I want naturopathic methods.

Someone said that hyperacusis has something to do with weak ear muscles. I'm not sure.

Please help with any advice. I know Satan & the Illuminati are behind ALL corruption, ailments & disease. I deserve to enjoy life, just like anyone else. My twin sister doesn't have this problem. She also smacks food in my ear on purpose, just to make me riled up, & then she gets everyone else to do it. I'm surprised I never dropped out of school because of it! I failed plenty of exams in school because of the gum!


Reply from Sarinne:

Candy,

Thank you for sharing your story. I'm sorry to hear of all the troubles you've been having. Good for you for persisting until you were able to get a referral to an ENT! I hope that a new medical professional can help shed more light on the problems related to your hearing, and more importantly that he or she can guide you in obtaining the resources to get you started toward overcoming the difficulties you describe.

Hyperacusis is not the same thing as tinnitus (ringing in the ears), but they often occur together and they share some similarities in how they affect people. Hyperacusis is a condition in which sounds of certain frequencies seem excruciatingly loud, even at normal volumes which don't bother others. You also mention a special sensitivity to gum popping and food smacking sounds -- people who have sensitivities to particular sounds like this are sometimes said to have "misophonia" or "selective sound sensitivity syndrome" (4S). Although little is understood about misophonia, it is distinct from hyperacusis. It's certainly possible to have both.

I don't want to trivialize the problems you are facing by pretending they can be solved with a few quick words of advice. I hope you will continue to seek help until you find someone who is able to work with you in successfully addressing them. Persistence and determination are your greatest assets! Best wishes in your journey to better health.

— Sarinne from Noise Help


PS Here are links to books with more in-depth information on these topics:
Hyperacusis
Misophonia / selective sound sensitivity syndrome (4S)
Tinnitus


Comments for Hyperacusis

Click here to add a comment

Jul 30, 2015
hypercusis NEW
by: hanginthere

Candy,
Appreciate the story. My dad was in Vietnam and one day he woke up with hearing loss. Suddenly just quit hearing. Like to have driven him crazy. Started in left and moved to right but right has enough for him to hear if you are in his face. He cannot stand it. Went to doc.Doc said you have sudden hearing loss. Went to another and he said same. Treatment: Steroids (the usual answer to everything), Valium, and of course locked in an institution. He chose neither. He has lived with it for 20 years now. It is a shame that your family has treated you so badly. Please know they will get their day!!!
Praying for you and your family. Everybody needs help. My dad thought he was losing his mine. As soon as doc showed my mom, she understood. He asked the doctor to rupture his ear drum. Doc said nope, can't, too close to brain. May not come out of it or total loss.

Click here to add a comment

Return to Ringing in the Ear: Share Your Experience.
















Stay in touch:

Follow @NoiseHelp

on Twitter!  




Affiliate Disclosure:
Some of the links on this website are affiliate links, which means that I may earn a commission if you click on the link or make a purchase using the link. When you make a purchase, the price you pay will be the same whether you use the affiliate link or go directly to the vendor's website using a non-affiliate link. By using the affiliate links, you are helping support the noisehelp.com website, and I genuinely appreciate your support.
Sarinne Fox
Creator and author of noisehelp.com



This website is powered by SBI!.